Migraine is among the most prevalent well being situations on the earth, but it’s usually misunderstood and even stigmatized. A part of the issue is its “invisible” nature; since others can’t see the ache, it’s straightforward to reduce the situation as “only a headache.”
That’s why it’s so essential to not solely study extra about headache and migraine issues however be in common contact with others who perceive what you’re going by. These organizations can assist you do exactly that.
Some provide academic supplies and help find medical doctors or clinics specializing in migraine and headache care, whereas others host boards, assist teams, and digital conferences.
Listed here are a number of the most useful and informative sources for folks residing with migraine and headache.
American Migraine Basis
The American Migraine Basis is a nonprofit group that promotes analysis, advocacy, and consciousness for these residing with migraine. The web site is chock-full of affected person guides and academic supplies, and its Migraine Tales part highlights the real-life experiences of individuals residing with migraine.
You can too be part of the group’s Transfer Towards Migraine Fb neighborhood that’s run by medical doctors and different headache consultants.
For those who’re in search of a health care provider, the discover assist software on the web site means that you can search by ZIP code to discover a migraine and headache specialist in your space.
Mind & Life
Because the affected person schooling web site of the American Academy of Neurology, Mind & Life incorporates a wealth of details about all types of neurological illnesses, together with headache and migraine.
The Mind & Life podcast — hosted by neurologists — tackles questions starting from the way to handle mind situations to the way to preserve your mind wholesome, and invitations superstar advocates and different folks to share their tales.
The group additionally points weekly press releases concerning the newest scientific analysis from main neurology journals and conferences.
Affiliation of Migraine Problems
The Affiliation of Migraine Problems develops instruments and sources to assist each healthcare suppliers and sufferers perceive migraine higher. Its Affected person Assets guides present academic movies that designate migraine therapies, amongst different matters, whereas the blogs and podcast present sensible suggestions in addition to views from actual folks and medical doctors alike.
Coalition for Headache and Migraine Sufferers
The Coalition for Headache and Migraine Affected person (CHAMP) is a nonprofit group that goals to assist folks with headache, migraine, and different associated situations. Its web site incorporates the whole lot from data on navigating insurance coverage and incapacity advantages to an summary of varied remedy choices.
CHAMP additionally organizes Retreat Migraine, an annual convention for folks residing with migraine.
Nationwide Headache Basis
The Nationwide Headache Basis has been round for 50 years as a useful resource for not solely folks with headache but additionally their households and the medical doctors who deal with them. On the inspiration’s web site, you’ll discover headache FAQs, headache tales, the Full Headache Chart (a glossary of many kinds of headache), and a listing of headache specialists throughout america.
Its Operation Brainstorm program is designed particularly to assist members of the army neighborhood discover a remedy plan that works for them.
Clusterbusters
Clusterbusters is an advocacy group that helps analysis for higher remedy of cluster complications, that are extreme complications that are available clusters (although a cluster headache is not a migraine assault). The group has additionally developed a health care provider locator to assist establish medical doctors educated about this sort of headache.
For many years, Clusterbusters labored to get the Facilities for Medicare & Medicaid Providers to cowl dwelling oxygen remedy for people residing with cluster complications. It prides itself on offering assist and assist to folks residing with the situation.
The group additionally supplies guides for navigating insurance coverage protection in addition to details about therapies.
Migraine Once more
Migraine Once more is a web-based neighborhood providing patient-focused suggestions and data for these residing with migraine. Its web site goals to equip readers with the instruments to “survive, and even thrive, regardless of continual ache,” and covers such matters as discrimination at work, sleeping nicely, and parenting with migraine. Migraine Once more is a part of the On a regular basis Well being Group.
Migraine.com
The Migraine.com Group Hub is a spot to learn posts by folks residing with migraine, share your individual migraine story, and take part in dialogue boards. Subjects embody methods to handle a migraine assault at work, migraine assault warning indicators, and the way migraine impacts your relationships. The neighborhood is moderated by individuals who’ve been impacted by migraine ultimately.
Further reporting by Laura McArdle and Ingrid Strauch.
